Pecos,
Awww thanks. You're right, I've learned to live with this pretty well, and besides fatigue, muscle twitching and swallowing issues, most of mine are neuro like brain fog, anxiety, depression, forgetting things.
I have done things in the past to get better though, herbs, vitamins and that darn raw diet. I hate doing the raw diet because I crave SUGAR!!!! BUT, after a week of doing it, I always have much more energy and feel better. Since I am weaning my 2 year old, I am considering trying juice fasting too, many claim it can really help many things.
Now that I know I really have a health problem, it's easier to start. Oh, my Lyme Doc is in CA, he's very good. I didn't know Loma Linda has Lyme docs there, that is exciting!!
There is also an alternative treatment in Germany and some people have claimed to be cured of chronic Lyme. I know someone right now who is over there, who's had it for 25 years and so far, she's doing great! However, I don't know long term (longer than 6 months) if it lasts.
I just pray that my babies don't have it. We suspect the oldest 2 do, our 7 year old is smart, but takes a long time to answer things. Had a little difficulty breathing at birth and just yesterday complained that his feet and legs were sore (happens to me). Last year he started complaining of his heart hurting, the doctor said he was fine. And he has a lot of strange phobias. We are going to talk with his teacher tomorrow to let her know that I was just diagnosed and he may have it too. Last year at school, his teacher told us that he was smart, but slow to listen sometimes, almost like he doesn't hear sometimes.
I believe that God will pull us through, He's taken care of me thus far, maybe He will be able to use us due to this, I don't know.
Thank-you so much and I'll keep you posted on my progress, I think I will definitely improve now that I KNOW what I am up against!!!
Take care,
Ocean
Is your panic just anxiety????? Please Read!!!!
Just curious have you had his hearing checked? My son passed the preschool screening but we had him at the ENT recently and found out he has moderate hearing loss in one ear and mild in the other. Now we have to go through a bunch of testing to see what caused it. It's sensorineural for him so that's usually permanent and can get worse. I'm hoping it just stays the same or we get a miracle and it goes away.Originally posted by Ocean:
Last year at school, his teacher told us that he was smart, but slow to listen sometimes, almost like he doesn't hear sometimes.Ocean

I know you've been doing all this stuff, but wondered if you'd had any experience with this doctor's ideas about treatment: <A HREF="http://www.lymedoctor.com/aboutDR.html" TARGET=_blank>http://www.lymedoctor.com/aboutDR.html</A>
Take care!
Take care!
Bna, thanks for your support. I also hope that it may help someone else. You are right that the symptoms are so vague and seemingly not connected, there is a little of everything mixed in it seems!
Faith,
We haven't had his hearing tested, but I'm pretty sure he is good. My husband and I were whispering about something in another room and we heard our son say, "what are you guys talking about?" It's almost like he hears it, but doesn't process it. He developed normally, socially he is shy, but my husband and I both were too!
I also hope that your son receives healing, or at least (like you said) stays at the level he is at. It's so hard for us parents when our babies hurt. I know even though I'm grown, my parents feel badly for me right now, and I understand how they feel.
Take care,
Ocean
Faith,
We haven't had his hearing tested, but I'm pretty sure he is good. My husband and I were whispering about something in another room and we heard our son say, "what are you guys talking about?" It's almost like he hears it, but doesn't process it. He developed normally, socially he is shy, but my husband and I both were too!
I also hope that your son receives healing, or at least (like you said) stays at the level he is at. It's so hard for us parents when our babies hurt. I know even though I'm grown, my parents feel badly for me right now, and I understand how they feel.
Take care,
Ocean